Multiple tissue reading....

A friend of mine sent this to me and I wanted to share it with you. I know some of the people who come here to check on Mike also have children suffering from this awful disease and I wanted to make sure that they all know how special they are. **Warning... this is a multiple tissue reading...



The Chosen Mothers
Most women become mothers by accident, some by choice and planning, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with a life threatening illness are chosen? Somehow, I visualize God hovering over earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger...
"Beth Armstrong, son, Patron Saint Matthew"
"Marjorie Forrest, daughter, Patron Saint Cecilia"
"Carrie Rutledge, twins, Patron Saint Gerard."
Finally, He passes a name to an angel and says, "Give her a child with cancer. "The angel is curious. "Why this one, God? She's so happy." "Exactly," smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel." "But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it. I watched her today," said God. "She has that feeling of self-independence that is so rare and necessary in a mother. You see, the child I'm going to give her has it's own world. She will have to make it live in her world and that's not going to be easy." "But Lord, I don't think she believes in you," said the angel."No worries, I can fix that. This mother is the perfect choice. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?" God nods. "If she can't separate herself from this child occasionally, she'll never survive. Yes, here is the woman I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step just ordinary. I will permit her to see clearly the things I see... ignorance, cruelty, prejudice... and allow her to rise above them." "And what about her patron saint," asks the angel with his pen poised in mid-air. God smiles and says..."A mirror will suffice." -Erma Bombeck

My name in print...

Good morning everyone! :)

I got a text this morning from Aunt Ei congratulating me because I made the comments section of the NY Daily News! It seems that, while they shortened my rant, they printed the complaint that I had about Kelly from Real Housewives New York! Ei is hoping for a response... I am mad that they shortened it!! It was a good rant!! LOL

Here is what I sent to them:

My 3 year old son is a patient at Memorial Sloan Kettering Cancer Center. On July 1 we were in the Pediatric Day Hospital and saw Kelly Bensimon in the playroom. I really wish that someone would tell her that wearing a see through mini-mini white lace outfit and prancing around like a supermodel was inappropiate. There are moms and dads in that place that haven't slept in days, haven't taken a shower for longer than 10 minutes at a time, aren't sleeping in their own homes, are spending days and weeks away from their families, are worried sick about their children and are going without many things while she is sitting there silently looking for attention and flaunting herself. Kelly, there is a time and a place for you, Sloan Kettering's playroom was not it.


This is what they printed... granted, it gets the point across but still... lol

Put some clothes on

Rockaway Beach: We recently saw "Real Housewives of New York City" star Kelly Bensimon in the pediatric hospital at Memorial Sloan-Kettering Cancer Center, where my 3-year-old son is a patient. Someone should tell her that wearing a see-through, mini-mini, white lace outfit and prancing around like a supermodel was inappropriate.

Christine L******-W********

I know, I know... I should just be glad that any time anyone Googles her name that will come up but still... I think my rant had a point. LOL

Well, thanks for reading everyone! :) Hope you are all doing well! I am going to get Katie ready for her first day of camp and get Mike ready for the new summer therapy schedule! I hope you are all doing well!! :) Please keep the prayers and good thoughts coming!! :)

Love,
Chrissie

Do you ever feel a little neurotic?

There are so many restrictions placed on and orders given for Mike by various doctors... not too much sun, not too cold, no community water, be careful of the sand on the beach, try not to let him get too many cuts for fear of infection, watch what he eats, make sure he gets enough sleep, watch for bruises... there are so many things that sometimes I feel like I am becoming neurotic!!

We have a new deck. It is built with Trex so there will be no splinters but since Mike isn't walking, his knees and feet (from the dropfoot) are being dragged along so I put him in pants and socks and sneakers! It's July and the poor kid is in jeans, socks and sneakers! And then when he comes to me and I pick him up I feel like he is warm so I get the thermometer. He doesn't have a fever, he's hot because he's in jeans and socks for crying out loud! I am forever washing his hands and checking him for cuts or bruises. And I can't even tell you how anal I am about what and how much he eats now. Since his diet is expanded I am constantly on top of how much he is eating! I am forever checking all of the meds to make sure we don't need refills or anything. I have never been super-organized but now I have file-folders... Rx receipts, consult co-pay receipts, insurance papers, lab results, path results... every topic has it's own folder.

I have found that I am on top of Katie much more now too. I feel like she is in need of so much attention but doesn't know how to go about getting it in a good way these days so she resorts to whining or saying things that she knows she probably shouldn't or even by being hyper and jumpy. I feel like I am constantly correcting her and on top of being frustrated by her behavior, I am totally exhausted so it comes out as yelling. I hate that. Every day I try to think of things to do with her and for her to make her not feel like she has to act out. Every day I try to talk to her and spend at least a few minutes with her... and just her. I need to do these things. I need to have her know that she is ok and that, despite all of the attention that Mike gets she is loved and is being taken care of just like before.

I am constantly worried and constantly thinking and constantly wondering where this neurotic behavior came from... Do all cancer moms or moms of kids with life-changing illnesses get like this? Or am I the only one that does all of this worrying, thinking and wondering?